MEASURE WHAT MATTERS
Terms and Conditions
Users of Measure What Matters are asked to agree to these terms & conditions when:
First registering for the platform
Creating or joining a new initiative
Note: Any use of these data implies consent to abide by these terms and conditions, which are effective as of November 14, 2016.
Joining 100 Million Healthier Lives
By creating a profile and using the Measure What Matters Platform, you are joining the 100 Million Healthier Lives movement as a member in the work to create health, wellbeing, and equity. By doing so, you are agreeing that you commit to following the 100MHL Core Principles:
Partner deeply and respectfully in the process of creating change with people, organizations and communities.
Promote equity, justice, strength and wholeness in the process of creating health.
Adopt a humble posture of learning and improvement that acknowledges the importance of stories and the value of metrics that matter, co-developed together.
Intentionally work to remove barriers in critical areas (e.g., payment reform, spread of good ideas) through intentional collaboration with traditional and nontraditional partners.
Make the way we work an example of what is possible.
The following principles govern our sharing of data and information with one another in 100 Million Healthier Lives.
Unprecedented collaboration – A willingness to share data across sectors within a community/initiative and to share data across programs and initiatives.
Innovative improvement – A willingness to share both what works and what doesn’t
System transformation – The integration and interoperability of data at multiple levels in a way that generates insight about what is happening at the neighborhood, community, regional, national and 100 Million Healthier Lives levels.
To facilitate this level of collaboration, we have created some boundaries which promote safety:
Individuals and organizations will not be identified unless they have chosen to do so.
Protocols and practices that support collaboration and sharing of data and stories
By clicking the “I Agree” button at the bottom of this form, I signify that I have joined 100 Million Healthier Lives and will abide by the terms of data use for all data displayed on the platform.
Data Use Restrictions
There is considerable state and local variation in policies and practices for publicly reporting data. The Measure What Matters Platform provides a safe space for sharing data to drive improvement and learning within the 100 Million Healthier Lives movement. The data (population, community, and societal level measures) stored and displayed on the Measure What Matters Platform will only be available to you and to 100 Million Healthier Lives (100MHL) and Community Commons administrative staff to support rollup and summary reporting of data at the community, county, regional and national levels in accordance with the spirit of Community Commons. However, data will not be linked to any one organization unless you have chosen to make your data visible to others. You will have the opportunity to do this within the platform. In addition, you may be part of a collaborative where you have contractually agreed to transparently share data, such as SCALE and Pathway to Pacesetters, in which case program administrators will have the right to make your work visible to your collaborators.
Transparency and a spirit of learning together is a key principle of 100 Million Healthier Lives. You will have the opportunity to make your initiative level data public. You may choose to do this both to support the development of small area local data within a community or as a way of reporting a bright spot or a fail forward story. Your data will always be visible to team members across your community. This, however, will be entirely in your control.
Population, neighborhood, community, and societal level measures may be viewable in a way that is deidentified across all “initiatives” and on platforms across the 100 Million Healthier Lives technology suite. Data identified with a particular initiative, organization or program (identifiable data), however, cannot be shared, published, or presented outside of 100MHL without written approval from the initiative lead(s)/owner(s) or without proper attribution unless waived by the initiative owner. No data which identifies a particular individual or community member will ever be viewable unless that member has chosen to make their measures visible. Team members of an initiative can seek written approval for external sharing of data directly from the initiative lead(s)/owner(s). A request is not a guarantee of approval, and anyone who is found to have shared data identifiable with a specific initiative outside of 100MHL without the approval of the owner(s) in question will be censured and terminated from the Measure What Matters Platform immediately and may be terminated as a member of 100 Million Healthier Lives.
Data on the Measure What Matters Platform can be downloaded or printed in the form of reports for reference by 100MHL members or partner organizations, but NOT for distribution without approval as indicated above.
The Measure What Matters Metrics Platform and its original content, features and functionality are owned by Institute for Healthcare Improvement (IHI), as the steward and convener for 100 Million Healthier Lives, and are protected by international copyright, trademark, patent, trade secret and other intellectual property or proprietary rights laws.